The truth about endometriosis: What every body deserves to know?
Let’s talk about endometriosis. It affects around 1 in 10 people assigned female at birth - that’s over 176 million globally. Yet, it remains one of the most misunderstood and underdiagnosed conditions in reproductive health.
We’ve long been sold the myth that painful periods are simply part of being a woman. But while mild cramping can be normal, the pain caused by endometriosis is next-level and it deserves serious attention.
What is endometriosis, really?
Endometriosis is a chronic, estrogen-dependent condition where tissue similar to the uterine lining grows outside the uterus. This tissue can show up on:
- Ovaries, fallopian tubes, cervix;
- Bowel, bladder, rectum;
- In rare cases, even the lungs or skin.
Each month, this rogue tissue responds to hormonal changes - building up, breaking down, and bleeding - just like the uterine lining. But unlike a period, this blood has nowhere to go. The result? Inflammation, scarring, and debilitating pain.
How does it affect your life?
Endometriosis can impact:
- Daily functioning - chronic pain, fatigue, and digestive issues;
- Mental health - anxiety, depression, and isolation;
- Fertility - up to 50% of infertility cases involve endometriosis;
- Career - 1 in 6 people report job loss or reduced work capacity due to symptoms.
Signs and symptoms to watch for
Endometriosis symptoms vary, but common ones include:
- Severe pelvic pain;
- Painful periods (dysmenorrhea);
- Heavy or irregular bleeding;
- Pain during sex;
- Painful bowel movements or urination;
- Fatigue, bloating, nausea;
- Infertility;
- Ovarian cysts;
- Pain during pelvic exams.
These symptoms can overlap with other conditions like IBS or PCOS, so severity and persistence are key indicators.
Why is it so hard to diagnose?
Endometriosis is notoriously tricky to diagnose. It often gets mistaken for:
- IBS;
- Pelvic inflammatory disease;
- Ovarian cysts;
- Thyroid disorders.
On average, it takes 8 years to receive a proper diagnosis. The gold standard? Laparoscopy - a surgical procedure where a camera is inserted into the pelvis to confirm the presence of endometrial-like tissue.
The gender pain gap
Let’s be honest: many people with uteruses are routinely dismissed when they report pain. Research shows women are 50% more likely to be misdiagnosed during a heart attack and the same bias applies to reproductive health. Pain is subjective, but your experience is valid. If you feel something’s wrong, advocate for yourself. Keep pushing until you’re heard.
Treatment options
There’s no cure for endometriosis, but there are ways to manage it:
Hormone therapy
Helps regulate estrogen and reduce tissue growth. Not a permanent fix, but can ease symptoms.
Anti-inflammatory diet
Reducing dairy, caffeine, refined sugar, and alcohol may help. Focus on leafy greens, walnuts, bok choy, and omega-rich foods.
Surgery
- Conservative surgery removes tissue while preserving reproductive organs;
- Hysterectomy may be considered in severe cases but is irreversible.
Always consult a specialist to explore what’s right for you.
Can you use a menstrual cup with endometriosis?
Yes. Many people with endometriosis safely use medical-grade silicone menstrual cups. They’re:
- Free from toxins, bleaches, and fragrances;
- Gentle on sensitive tissue;
- Better for managing heavy flow and clots;
- Cost-effective and eco-friendly.
Always consult your healthcare provider first, especially if you experience pelvic pain or have undergone surgery.
Endometriosis is real, painful, and often invisible. But you are not alone and you deserve answers, support, and relief.
This article is intended for educational and informational purposes only. It does not constitute medical advice, diagnosis, or treatment. If you are experiencing symptoms of endometriosis or have concerns about your reproductive health, please consult a qualified healthcare provider. Every body is unique, and personalized medical guidance is essential for proper care.
Photo sourced from the promotional poster for the documentary The Silent Enemy – Endometriosis by Klara Landrat
